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Q.
What about medical Information?
A.
For immediate medical information, please check with your
doctors, or check with Down syndrome specific
medical information sites. Every child is a little different
and each has it's own medical needs. Most of the sites concerning
Down syndrome listed elsewhere on this site
will have links to help you find the exact information you
seek. That worldwide information will be more abundant, and
more accurate, than any information than we could present
here. (My wife and I are not Doctors).
Q . What is the purpose of this site?
A . As parents of a daughter with Down syndrome,
we know how frustrating it is to find a source of local information.
As a new parent with a Special Needs child, you feel like
a ping pong ball bouncing around from one voice to another,
not knowing which way to go. Time is important to the developement
of your child! We started this site to bring as much local
information as we could to one place, one website, so any
new (or old) parent can quickly check one local source for
the information that may help them. Time is critical for information
to a new parent of a newborn with Down syndrome.
Q
. How much information will you be adding?
A
. Our primary goal is to help locally as best we can with
our limited resources. Rather than list every Down
syndrome link or resource in the world located here
under a thousand web pages, our goal is to have a more intimate
and family feel to our website. Our main concern is our local
Community, and the Broward County area here
in South Florida seemed a good place to start.
Q.
Is this a Government agency?
A
. No. We are just individuals and parents trying to help our
Community and sharing our daughters life.
- If
you haven't already, contact these two groups. Broward
Gold Coast Down syndrome Organization and PODS
Angels Support Group Foundation.
This lets you talk to other parents with children who were
at one time, exactly where you are now. They are here for
you! They are not on the outside
looking in, because like you, they also have children with
Down syndrome. Simply call or email them
right away.
- The
next thing you may want to do is call Child Find.
Their local office is 954-767-8522. They
do evaluations (from birth to 21 years of age) to identilfy
educational program needs. Child Find 'sets up' the appointments
with CDTC for 0-3. Child Find is the one that calls CDTC
and sets up your 1st appointment. They are a central control
of sorts, of documents that show where, how, who referred,
what hospital, the stats on how and where the children come
from for statistic purposes. They
have charts and graphs on this kind of information. Once
again, they help you determine what kind of help you can
arrange for your child. They are not Down syndrome
specific, but help all children.
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